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Epilepsy Awareness Month: One Nurse's Story

Epilepsy Awareness Month: One Nurse's Story

Posted by Lisa Powers RN MSN on 28th Oct 2020

November is Epilepsy Awareness Month

Lisa PowersI am a warrior for all those suffering from this too often-misunderstood diagnosis.

Epilepsy is the fourth most common neurological disorder and affects people of all ages.

According to the Epilepsy Foundation, “Public misunderstanding of epilepsy causes challenges that are often worse than the seizures”.

I cannot agree more. The public, and even those in the medical profession, do not understand this disease like one could hope. I had been a nurse for many years and yet never witnessed a seizure. I dispensed seizure medications at work, but never actually saw one until I saw it as a mother, with my own son. What a wake-up call to put it lightly. Of course, as a nurse and a Mom, I started researching, diligently and daily. I wanted support and I wanted answers. I was given very little of either. I wanted to stop his seizures. I wanted to save my son. Well, I tried and am still trying and will keep trying until either one of us takes our last breath.

Epilepsy can come in many forms. The effects are variable with each type of epilepsy. Giving any improvement at all to the quality of life for these individuals is a positive worth celebrating and if cannabinoids can do that, I am all in.

My son was diagnosed with epilepsy at age of 23, as he was graduating college with an IT degree. That diagnosis, ten years ago, broke my heart. My heart continues to break over and over, seizure after seizure. My son has the “tonic clonic” type of epilepsy and the injuries are many.

We have worked with several medical facilities and some great doctors, but neurological disorders are very hard to treat. This Mom and nurse decided to take matters into their own hands. After hearing about CBD for the first time about five years ago, we spent thousands on CBD oils from reputable sources, like NurseGrown Organics. We have made our own cannabis medicine. We have tried CBDA and THCA and other herbal medicines. His seizures kept getting more frequent. My son has his cannabis medical card and uses dry herb vaporizing and some edible forms of cannabinoids to help with the many different aspects of having epilepsy.

So, even though my son was not successful stopping or even reducing seizures using CBD and other cannabinoids, (you can find lots of other success stories out there!), we did discover the many other benefits of using this magical plant. I will continue to search for ways to improve my son’s life from debilitating side effects of prescription medications, to nausea, insomnia, depression, stress, anxiety, and pain.

I continue to support and help as many people as I can by sharing what I have learned over the years. I advocate for NurseGrown products because I know they are truly the highest quality available. I will continue to make sure my son has what he needs to live his best quality of life. I will continue to work with lawmakers to assure access to this wonderful treatment option for all. He is a warrior and so am I. You can be too, by reading this and hopefully having a better understanding of how this condition affects people.

Epilepsy Awareness Ribbon

If you live with or know anyone with this condition, just know they can seem totally fine from the outside, but inside is where the real battle exists. The sadness, fears, depression, even suicidal thoughts, live inside many patients with epilepsy. They need more support than we realize. I encourage you to get to know someone with epilepsy. Ask them questions. Ask about challenges and ways that can support them.

Let's all give a shout out to the warriors and support persons dealing with this disease, this battle! If I can be of assistance for help at all, I am always here.

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